I haven’t written in a while and I apologize. Things have have been bubbling here in the LightHouse, some good, some … eh. So I’ll fill in the gaps for you.
Back in July LightGirl was visiting a friend and they went walking in the woods chattering away as girls are wont to do. A few days later, she found a tick in her bellybutton (of all places). She had a rash and some other odd symptoms so I took her to the doctor … who chastised her for not wearing insect repellent and did some blood work. And off we went on our trip to Vermont. Some days later I received a phone call from the doctor’s office saying that the test for Lyme Disease was positive and they were calling in a script for antibiotics. Okay. She didn’t do well on those particular antibiotics, so we changed to a type called Ceftin.
She finished that round last Thursday (a week ago today). But she wasn’t doing well. She was lethargic and achy. Her head hurt and she didn’t have a very good appetite. I had to beg her to go to hockey practice (which is very unlike her). So we went back to the doctor, who put her on another round of antibiotics and got us an appointment with an infectious disease specialist if she did not improve by the end of this round (mid-September). By Tuesday morning, something was seriously wrong with my girl. She couldn’t stand up longer than a minute or two and was complaining that her knees hurt. She would not go up or down the stairs more than once a day. So I called the doctor to get in to see the infectious doctor earlier. It took two days, but we finally got an appointment to see a specialist in Charlottesville today. Our doctor faxed her records to him. Imagine my surprise, when he called yesterday afternoon to tell us that her Lyme blood test results from July were NEGATIVE! They had never been positive at all.
LightHusband looked up her antibiotic on the internet and it seems that the symptoms we had attributed to Lyme Disease are also less common side effects of the Ceftin. She has not taken any of the antibiotic since that phone call (she’s missed two doses) and she is steadily improving. She has no joint pain and her soul is back there in her eyes. She’s laughing with us and eating normally again. She has a lot of her sass back … which I may regret, but I will enjoy.
So there have been quite a few ups and downs over the past few days. I’ve been reading the political news fairly avidly and will probably be sharing some of my thoughts on that soon. I have a few more book reviews to post in the next couple of weeks. I’ve been trying to get school organized and begun … but of course, with LightGirl sick, no school has happened. However, LightBoy has begun making SockMonsters from all of our singletons this week. He is also using LightHusband’s old ties as accoutrements. He is busy dreaming up an internet kingdom selling these recycled toys. So, this is an education of a different sort.
Sigh … onward and upward.
UPDATE: And now the rest of the story …
We had an appointment with our primary care physician this afternoon and an education at the same time. So … it turns out that there are “strict constructionist” doctors, just as there are strict constructionist judges. Who knew? When testing for Lyme Disease there are these things called bands. I have no idea what those are … but they … um … are. In any case, there are five of them. For a strict constructionist doctor, you must have five of five positives to get a diagnosis of Lyme Disease. Now, our primary care doc, saw LightGirl … saw that she was presenting with a tick bite and a rash AND three out of five positive bands and decided to be conservative. She does this all the time. She said that only one of her Lyme Disease cases presented with all five bands positive this summer. It’s a gray area, as she freely admitted.
LightGirl is doing better and better the longer she is off the meds so all is well and we are all breathing a little easier now.